Teaming Up to Treat Rett Syndrome: The Importance of Fostering a Multidisciplinary Approach to Patient Care

Target Audience
The educational design of this activity addresses the needs of neurologists, pediatric neurologists and specialty NP/PAs involved in the treatment of patients with Rett syndrome.

Program Overview
With newer therapies now available for the treatment of Rett syndrome, it is essential that the challenges of managing patients with rare diseases, such as Rett syndrome in resource-poor areas or “care deserts” be addressed.

Join a neurologist and a gastroenterologist from Children’s Health Dallas, an International Rett Syndrome Foundation (IRSF)-designated center of excellence, as well as a local neurologist “champion,” who will provide an overview of newly available therapies for the treatment of Rett syndrome and explore the increased importance of neurologist-gastroenterologist collaboration for adverse event monitoring and management. These experts will also review the need for lifelong, multidisciplinary team-based care for Rett syndrome patients, and share practical strategies to improve care access for patients who may not have geographic access. Case-based discussions will explore the unique unmet care needs in community-based settings in the region and offer targeted solutions to building a multidisciplinary care team in the community and effectively leveraging new treatment options in the clinic. This activity is the second in a larger three-part educational initiative aimed at bettering outcomes for patients with Rett syndrome.

Learning Objectives
After completing this activity, the participant should be better able to:

Summarize the components of the multidisciplinary approach for Rett syndrome
Discuss the need for enhanced neurologist-gastroenterologist collaborations for optimal adverse-event monitoring and management
Apply relevant strategies to facilitate team-based care in Rett syndrome in the community settings
Recognize where new treatments fit in the multidisciplinary care of Rett syndrome