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Exploring New Treatment Advances for Acid Sphingomyelinase Deficiency in Adults
STATEMENT OF NEED
Acid sphingomyelinase deficiency (ASMD) is a rare, hereditary lysosomal storage disease with multisystemic manifestations, including splenomegaly, hepatomegaly, interstitial lung disease, dyslipidemia, bone marrow and lymph node involvement, and sometimes neurological and peripheral nerve involvement. While the most severe form of ASMD, infantile neurovisceral ASMD, results in death in early childhood, chronic forms of ASMD have more prolonged survival but are associated w... |
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Exploring Novel Treatments for Rett Syndrome
STATEMENT OF NEED
Rett syndrome is a rare, debilitating neurodevelopmental disorder almost always associated with a spontaneous mutation in the methyl-CpG-binding protein 2 (MECP2) gene on the X-chromosome. Affected individuals experience loss of purposeful hand skills, abnormalities in gait, loss of spoken language, and stereotypic hand movements, with more severe manifestations including seizures, autistic features, autonomic nervous system dysfunction, breathing abnormalities, sleep dist... |
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Navigating pain management, safe opioid prescribing, and opioid use disorder
This program is presented in six thirty minute sessions that can be completed individually.
The sessions are:
Session 1: Pain Taxonomy, pathogenesis, and assessment
Session 2: Developing a patient-centered pain treatment plan
Session 3: Non-opioid analgesics: Evidence and clinical pearls
Session 4: Opioid analgesics: From A to Z
Session 5: Clinical use of opioids: Safe prescribing and appropriate monitoring
Session 6: The exit strategy: When the treatment becomes the ... |
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Advancing the Care of Patients Living with EGPA Through Multidisciplinary, Patient-Focused Care
Target Audience
This educational activity is intended for rheumatologists, allergists, immunologists, pulmonologists, and specialty advance practice clinicians who care for patients with EGPA.
Program Overview
The comprehensive program provides up-to-date information regarding EGPA"its recognition, diagnosis, and treatment"and incorporates the patient perspective to raise awareness of patients’ needs, heighten urgency, and, ultimately, educate on the disease. The program will ... |
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Call to Action for Health Equity: Racial Disparities in the Care of Patients with Cardiometabolic Disease
Cardiovascular disease is the leading cause of death for adults in the US. However, patients from minority populations with cardiovascular disease have disproportionately poor health outcomes and are particularly vulnerable to health disparities. Racial inequities in health also result in higher risk-burden in minority groups for metabolic syndromes such as Type 2 (adult-onset) diabetes, which increase the risk of cardiovascular disease. Health disparities in cardiometabolic care predominantly... |
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FOP: Enhancing Diagnosis and Management to Improve Patients’ Quality of Life
Target Audience
The educational design of this activity addresses the needs of the primary audience of orthopedists, bone specialists, rheumatologists, pediatric rheumatologists, and genetic counselors, and the secondary audience of PCPs, pediatricians, dermatologists, endocrinologists, occupational therapists, oncologists, general practice NPs and PAs, and specialist NPs and PAs.
Program Overview
Because fibrodysplasia ossificans progressiva, or FOP, is exceedingly rare, even specialists... |
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PARP Inhibition as Ovarian Cancer Maintenance Therapy: Improving Patient Outcomes as a Multidisciplinary Team
Ovarian cancer (OC) is often diagnosed at an advanced stage and has generally poor survival rates¬"even after aggressive surgical management and chemotherapy. Without maintenance therapy, approximately 70% of patients relapse within 3 years of treatment. Recent clinical trials of polyadenosine diphosphate-ribose polymerase (PARP) inhibitors have demonstrated substantial efficacy as maintenance therapy for OC patients. Additionally, clinical evidence suggests that daily monitoring of pati... |
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Cleveland Clinic Hospital Medicine
Cleveland Clinic Hospital Medicine features a comprehensive review of the most common and relevant conditions seen in the inpatient setting. A globally renowned faculty addresses the application of new evidence, interprets current guidelines and provides management strategies which can improve the quality of medical care. All physicians, nurses and physician assistants treating hospitalized patients will benefit from this thoughtful assessment of best practices in this critical area of medici... |
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FOCUS: Functional pain and Opiods " Clinically Useful Strategies
Target Audience
The target audience includes family medicine physicians, emergency physicians, physician assistants, nurse practitioners, pharmacists, and other healthcare providers involved in the management of patients experiencing functional pain
Program Overview
Learn how to assess and treat functional pain syndromes caused by nociplastic pain. This course is based on the FDA’s Opioid Analgesic REMS Education Blueprint.
Learning Objectives
Upon completion of this activity, parti... |
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Creating Solution-Focused Partnership - Lynn E. Fox, PhD, CCC-SLP
This course is targeted for Speech-Language Pathologists in acute and sub-acute rehabilitation settings. Couple and family therapists and some speech-language pathologists have recently begun to use solution-focused brief therapy to promote functional change in their clients lives. This session will illustrate how a solution-focused approach can also facilitate building partnerships between speech-language pathologists and members of their clients social network, including family members, and ... |
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It's a Family Affair: Social Communication in Children with ASD - Amy Donaldson, Ph.D., CCC-SLP
Improving social communication skills of children with autism spectrum disorder (ASD) is often the focus of intervention. However, generalization of skills can be a challenge. Recently, two intervention methods for targeting social communication have been found efficacious: peer-mediated intervention and video modeling. At PSU's Speech, Language & Hearing clinic we have been combining these methods to create a 'hybrid' social communication intervention, where the sibling of the child with ASD ... |
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Pediatric Dysphagia for the Medically Complex Infant, Toddler, Child - Michelle Dawson, MS CCC-SLP
The ability to eat with peers in during snack time, or participate in family mealtimes may be the norm for the general population, however there is a subset of the pediatric population that does not have the ability to independently or safely engage in these activities of daily living due to the presence and severity of their oropharyngeal dysphagia. This 6 hour course is designed to educate attendees on the intricate interplay of the pediatric Brain-Mouth-Gut connection and how errors in thi... |
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Supportive Communication for the Child with Special Needs
Supportive Communication for the Child with Special Needs is a 1-hour audio continuing education (CE/CEU) course that provides practical tips for helping parents to communicate with their child who has special needs.
Parenting a child with special needs comes with many challenges. Parents are often under pressure, not knowing what to expect or how to react and manage the behaviors their child may present. Children who have supportive and caring parents who understand their needs generally e... |
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Schizophrenia: Understanding & Treating
Schizophrenia: Understanding & Treating is a 3-hour online continuing education (CE) course that provides clinicians with practical guidance in understanding and treating schizophrenia.
Schizophrenia is a complex condition that is poorly understood by the general public and by many mental health clinicians, who receive little training on the condition. It’s important to understand because it’s the most debilitating and costly of all adult psychiatric illnesses.
To start, we’ll revi... |
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